The need is great
One in 26 of us will develop epilepsy in our lifetimes.
More people suffer from epilepsy than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson’s Disease combined, yet epilepsy research funding totals less than half of any one of those other conditions.
Seizures affect our families, friends, neighbors, seniors, military veterans, infants and children … including a teenager named Lily. With her as our inspiration, we bring epilepsy out of the shadows, in hopes of spurring more investment in research here at the UW-Madison.
Since its inception in 2007, Lily’s Fund for Epilepsy Research has flourished, thanks to the volunteers, donors, friends, and businesses who have embraced our cause.
Scientific Advisory Committee
We are excited to have the guidance and energy of our Lily’s Fund Advisory Board to help us create and implement a strategic vision for Lily’s Fund and future epilepsy research at the University. Committee members include:
- Tracy Cabot, School of Medicine and Public Health
- Shawn Guse, President/CEO, Intuitive Biosciences
- Brad Jolin, UW Foundation
- Rama Maganti, Professor, Neurology, UW-Madison
- Anne Morgan Giroux, Lily’s Fund
- Rick Moss, Associate Dean, School of Medicine and Public Health
- Donata Oertel, Chair, Neuroscience
- Bob Pearce, Chair, Anesthesiology
- Colleen Penwell, Lily’s Fund
- Avtar Roopra, Associate Professor, Neuroscience
- Kathleen Shannon, Chair, Neurology
Goal #1: Increase Awareness of Epilepsy
We do this through Purple Day, Lily’s Lemonade Stands, Lily’s Luau and other efforts.
Goal #2: Support Those Living with Epilepsy
Lily’s Friends is a group of parents who have children with epilepsy who meet regularly to share information and experiences, ask questions of each other, and find comfort knowing we are all comrades in the same battle.
Goal #3: Raise Money for Local Research
Our major fundraiser, Lily’s Luau, was first held on January 10, 2009. Over the seven years, the luau has more than doubled in attendance and quadrupled the money raised. This midwinter luau, where snow boots and grass skirts meet for an awesome evening of music, dancing, food and an auction, have had sell-out crowds of more than 700 people. Equally important, the event has increased awareness of epilepsy and the need for more research
Goal #4: Support Cutting-Edge Research at UW
In April of 2012, the Lily’s Fund Scientific Advisory Board met to create and implement a strategic vision for Lily’s Fund and future epilepsy research at UW-Madison.
Lily’s Fund depends on volunteer staff and advisory committees.
We also have a scientific advisory board consisting of researchers, physicians and community leaders to guide our research funding. Finally, we have our core volunteers, the glue that keeps us focused and moving forward towards our goals. Throughout the course of a year, hundreds of volunteers are involved in some aspect of Lily’s Fund.